Epidemiological Obfuscation

Epidemiology ostensibly exists to reveal and ascribe features to burdens of disease at a population level. However, as the designated arbiter of visibility in public health, it is well-positioned to also obscure burdens of disease with significant implications for both social justice and disease control. This edited volume brings together empirical accounts of epidemiological obfuscation developed by public health researchers from diverse fields, including medicine, history, anthropology, sociology, epidemiology, and rhetoric. In reading across these rich accounts, we begin to characterise what epidemiological obfuscation is, the situations in which it occurs, and the practices underlying it. As such, the book serves not only as a catalogue of independently interesting and robustly developed accounts of important episodes in the history and contemporary practice of epidemiology but also as a foundational body of scholarship on this central but oft overlooked aspect of epidemiology, namely, its ability to obscure as well as elucidate. Chapter 2 of this book is freely available as a downloadable Open Access PDF at http://www.taylorfrancis.com under a Creative Commons Attribution (CC BY) 4.0 license and Introduction, Chapter 11 and Chapter 12 are available open access under Creative Commons Attribution-Non Commercial-No Derivatives (CC BY-NC-ND) 4.0.

Freya L. Jephcott is a Senior Research Associate in medical anthropology and epidemiology at the University of Cambridge and a Senior Lecturer in Global Health at the University of Sydney. She convenes the Hidden Epidemics and Epidemiological Obfuscation Research Network and Outbreak Ethnographies project. In addition to her research, Freya also does intermittent applied epidemiological work for Médecins Sans Frontières and the World Health Organization. Hillary A. Ash is an Assistant Professor in the Department of Communication at Saint Louis University (USA). Coreen McGuire is an Assistant Professor in the Department of History at Durham University (UK).

1. Introduction: Elucidating Epidemiological Obfuscation I. Relative Burdens and the Construction of "Inherent" Community Problems 2. Distributed Ignorance, Tricky Cases, and Low Hanging Fruit: Targeting Antibiotics and Treating Bladders 3. Categorically Other: The Production of (Non-)Knowledge about Women with AIDS through Surveillance Data Collection and Reporting 4. Directing and Deflecting Attention in Fronter Nursing Service Bulletins: Public Health and Maternal Health Care in Eastern Kentucky, 1925-1935 5. Investigating Categories in The Treasury of Human Inheritance 6. #BlackMamasMatter as Critical Race Counterstory: Resisting the Obfuscation of Obstetric Racism II. The Materiality of Obfuscation 7. "The One Thing Worse than No Test is a Bad Test": Medical Obfuscation in the Lyme Disease Epidemic in Scotland 8. Silenced Voices: The Injustice of Excluding the Global South from Academic Research 9. Epidemic Corpses and Photographic Obfuscation III. (Un)Applied Epidemiology 10. Unravelling the Neglect of the Human T-Cell Leukaemia Virus Type 1 (HTLV-1): A Critical History of Early Perspectives Toward HTLV-1 in a Remote Aboriginal Population in Central Australia 11. Embodying a Partially Sighted System of Surveillance: Observations of an Unacknowledged Burden of Acute Flaccid Paralysis in the Brong Ahafo Region of Ghana 12. Unawareness, or What We Do Not (Want to) Know. Index